TY  - JOUR
AU  - Bel Fenellos, María Cristina
AU  - Biencinto López, Chantal-María
AU  - Orio Aparicio, Cristina
AU  - Silva-Mori, Xana da
AU  - Jair Antonio Tenorio-Castano
AU  - Pablo Lapunzina
AU  - Julian ´ Nevado
PY  - 2025
DO  - 10.1016/j.ridd.2025.104974
SN  - 0891-4222
UR  - https://hdl.handle.net/20.500.14352/133038
T2  - Research in Developmental Disabilities
AB  - Background: Wolf-Hirschhorn Syndrome (WHS) is a rare genetic disorder characterized by intellectual and physical disabilities. Families with a child affected by WHS face unique challenges that impact their quality of life. Understanding Family Quality...
LA  - eng
M2  - 1
PB  - Elsevier
KW  - Caregivers wolf-Hirschhorn syndrome
KW  - Family quality of life
KW  - Intellectual disability
KW  - Rare diseases
TI  - Family well-being in families with children and young people with wolf-hirschhorn syndrome
TY  - journal article
VL  - 160
ER  -