RT Journal Article
T1 Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale
A1 Lleuger-Pujol, Roser
A1 Ortega Castelló, Eduardo
A1 Fernández Franco, Lorenzo
A1 Espinel Vallejo, Manuel Eliecer
A1 Muñoz Cabello, Patricia
A1 Santos Simarro, Fernando
A1 McAllister, Marion
A1 García-Miñaúr, Sixto
A2 Austin, Jehannine
AB Evaluation of clinical genetic services is challenging due to the nature of their interventions. The Genetic Counseling Outcome Scale (GCOS-24), a patient-reported outcome measure, was developed to measure empowerment, an important patient-reported outcome from genetic counseling. Previously, we translated and adapted GCOS-24 for use in Spain, but neither test–retest reliability nor structural and construct validity were assessed at that time. In the present study, we set out to test the reliability and validity of the Spanish adaptation of the GCOS-24 against already validated Spanish language measures of satisfaction with life, anxiety, and health locus of control. 880 patients/families who attended the genetics clinic were invited to participate in a online survey. 201 participants (23%) completed the four questionnaires at the first timepoint, and 59 of these (29%) completed GCOS-24 again the second timepoint, 2–4 weeks later. Test–retest reliability was confirmed, with no significant differences between responses to GCOS-24 at the first and second timepoints and good internal consistency. Convergent validity was confirmed between GCOS-24 and measures of satisfaction with life and anxiety but not with measures of health locus of control. For the structural and construct validation, an exploratory factor analysis was performed. The resulting factorial structure of GCOS-24 consists of 6 factors that accumulate 68% of the variance shared by the 21 items that remained in the model. We applied the factor structure of the three validated measures to the available data and analyzed the correlation between factors of GCOS-24 and the other scales. The results showed significant and consistent correlation with factors of the satisfaction with life and anxiety scales but no significant correlation with internal health locus of control. The use of the Spanish adaptation of GCOS-24 in other genetic clinics in Spain will help to validate it further. This study contributes to the international validation of GCOS-24 to evaluate the quality of genetic counseling in Europe.
PB National Society of Genetic Counselors
SN 1059-7700
YR 2021
FD 2021-05-26
LK https://hdl.handle.net/20.500.14352/109297
UL https://hdl.handle.net/20.500.14352/109297
LA eng
NO Lleuger-Pujol, R, Castelló E. O.,Franco L. F., Vallejo M. E. E., Cabello P. M., Simarro F. S.,McAllister M., & García-Miñaúr S. (2022). Further validationand psychometric properties of the Spanish adaptation of theGenetic Counseling Outcome Scale. Journal of GeneticCounseling, 31, 71–81.
DS Docta Complutense
RD 18 mar 2026