RT Journal Article
T1 Unmet Needs Associated with Attention-Deficit/Hyperactivity Disorder in Eight European Countries as Reported by Caregivers and Adolescents: Results from Qualitative Research
T2 Necesidades inadecuadamente cubiertas en el trastorno por déficit de atención con hiperactividad en ocho países europeos según lo informado por cuidadores y adolescentes: resultados de una investigación cualitativa
A1 Sikirica, Vanja
A1 Flood, Emuella
A1 Dietrich, C Noelle
A1 Quintero Gutiérrez Del Álamo, Francisco Javier
A1 Harpin, Val
A1 Hodgkins, Paul
A1 Skrodzki, Klaus
A1 Beusterien, Kathleen
A1 Erder, M Haim
AB IntroductionAttention-deficit/hyperactivity disorder (ADHD) is a neurobehavioral disorder characterized by inattention, impulsivity, and hyperactivity, the levels of which are inappropriately high for an individual’s developmental age.ObjectiveThe objective of this study was to explore the unmet needs of children/adolescents with ADHD and their caregivers in eight European countries.MethodsSemi-structured interviews with 38 caregivers of children/adolescents (aged 6–17 years) with ADHD and no or less serious comorbidities and 28 adolescents (aged 13–17 years) with ADHD and no or less serious comorbidities were conducted, audio-recorded, transcribed into English, and coded for analysis.ResultsCaregivers reported their own ADHD-related issues, including making personal accommodations, such as limiting activities and spending extra time/effort caring for their child/adolescent, social impacts, and strained relationships. Medication was generally considered helpful; however, most children experience core ADHD symptoms while on medication (reported by 88 % of caregivers and 100 % of adolescents). Adolescents often reported schoolwork difficulties (96 %) and peer issues (75 %), while caregivers reported school issues (84 %) and peer difficulties (79 %). Caregivers reported minimal ADHD education and community support. Caregivers (29 %) and adolescents (54 %) desired medication that better controlled symptoms but had concerns about being oversubdued. Caregivers reported concerns about adverse effects (21 %).ConclusionsEuropean caregivers of children/adolescents with ADHD identified multiple unmet needs, which persist despite treatment. Adolescents noted impacts on school and social interactions consistent with caregivers. Future research is needed to quantify the study findings, and, ultimately, ease the impact of ADHD on patients and their caregivers.
PB Springer
SN 1178-1661
YR 2014
FD 2014-06-12
LK https://hdl.handle.net/20.500.14352/97026
UL https://hdl.handle.net/20.500.14352/97026
LA eng
NO Sikirica, V., Flood, E., Dietrich, C.N. et al. Unmet Needs Associated with Attention-Deficit/Hyperactivity Disorder in Eight European Countries as Reported by Caregivers and Adolescents: Results from Qualitative Research. Patient 8, 269–281 (2015). https://doi.org/10.1007/s40271-014-0083-y
NO The online version of this article (doi:10.1007/s40271-014-0083-y) contains supplementary material,
DS Docta Complutense
RD 5 abr 2025