RT Journal Article
T1 Adaptation and Validation of a Questionnaire to Evaluate Knowledge of the Low Phe Diet in PKU
A1 Ramos Álvarez, Rodolfo
A1 Kapp, Maili
A1 Rodríguez Ruiz, María Mercedes
A1 Fausor, Rocío
A1 Bueno Delgado, María Amor
A1 Ahring, Kirsten
A1 Waisbren, Susan E.
AB Phenylketonuria (PKU) is an autosomal recessive disorder of phenylalanine (Phe) metabolism, causing a build-up of Phe in the body. Treatment consists of a Phe-restricted diet for life and regular determination of blood Phe levels to monitor the intake of Phe. Despite the fact that diet is the cornerstone of treatment, there are no studies examining common knowledge about food items and whether they are allowed as part of the PKU diet. Improving parents’ and patients’ knowledge and competence about the diet enables them to make appropriate food choices. This study validates a food-knowledge questionnaire first developed in Spanish and modified for English speaking populations. The questionnaire potentially helps parents to prepare appropriate meals and healthcare providers to create individualized educational programs about PKU for children and adolescents with this disorder.
PB MPDI
SN 2072-6643
YR 2021
FD 2021-08-07
LK https://hdl.handle.net/20.500.14352/5009
UL https://hdl.handle.net/20.500.14352/5009
LA eng
NO Vice-Rectorate for Scientific Policy and Research of the Granada University
DS Docta Complutense
RD 5 abr 2025