Patient, parent and professional expert perspectives on personalized regenerative implants: a qualitative focus group study
| dc.contributor.author | van Daal, Manon | |
| dc.contributor.author | de Kanter, Anne-Floor J. | |
| dc.contributor.author | Martínez Sanz, Elena | |
| dc.contributor.author | Bredenoord, Annelien L. | |
| dc.contributor.author | de Graeff, Nienke | |
| dc.date.accessioned | 2024-10-07T11:18:50Z | |
| dc.date.available | 2024-10-07T11:18:50Z | |
| dc.date.issued | 2024-09-02 | |
| dc.description.abstract | Background: Perspectives of patients, parents and professional experts on personalized regenerative implants for regenerative medicine purposes are largely unknown. Method: To better understand these perspectives, we conducted four focus groups with professional experts of mixed European nationality (n = 8), Dutch patients with regular implants (n = 8), Dutch and Belgian (n = 5) and Spanish (n = 8) parents of children with cleft palate. Results: Two overarching themes were identified: ‘patient-centered research and care’ and ‘ambivalent attitudes toward personalized regenerative implants’. Discussion: The results reveal that stakeholders should adopt a participatory rather than an impairment discourse and address the ambivalence among professional experts, patients and parents. Conclusion: Considering stakeholder perspectives facilitates ethical and responsible development and use of personalized regenerative implants. | |
| dc.description.department | Depto. de Anatomía y Embriología | |
| dc.description.faculty | Fac. de Medicina | |
| dc.description.refereed | TRUE | |
| dc.description.sponsorship | Unión Europea | |
| dc.description.status | pub | |
| dc.identifier.citation | Daal MV, de Kanter AJ, Custers RJ, Martínez-Sanz E, Bredenoord AL, Graeff N. Patient, parent and professional expert perspectives on personalized regenerative implants: a qualitative focus group study. Regen Med. 2024;19(7-8):393-406. doi:10.1080/17460751.2024.2386214 | |
| dc.identifier.doi | 10.1080/17460751.2024.2386214 | |
| dc.identifier.essn | 1746-076X | |
| dc.identifier.issn | 1746-0751 | |
| dc.identifier.officialurl | https://doi.org/10.1080/17460751.2024.2386214 | |
| dc.identifier.relatedurl | https://www.tandfonline.com/doi/full/10.1080/17460751.2024.2386214 | |
| dc.identifier.uri | https://hdl.handle.net/20.500.14352/108706 | |
| dc.issue.number | 7-8 | |
| dc.journal.title | Regenerative medicine | |
| dc.language.iso | eng | |
| dc.page.final | 406 | |
| dc.page.initial | 393 | |
| dc.publisher | Taylor & Francis Group | |
| dc.relation.projectID | 953134 | |
| dc.rights | Attribution 4.0 International | en |
| dc.rights.accessRights | open access | |
| dc.rights.uri | http://creativecommons.org/licenses/by/4.0/ | |
| dc.subject.cdu | 617 | |
| dc.subject.keyword | ethics | |
| dc.subject.keyword | implant | |
| dc.subject.keyword | perspectives | |
| dc.subject.keyword | qualitative research | |
| dc.subject.keyword | regenerative medicine | |
| dc.subject.keyword | stakeholder participation | |
| dc.subject.ucm | Ciencias Biomédicas | |
| dc.subject.unesco | 71 Ética | |
| dc.title | Patient, parent and professional expert perspectives on personalized regenerative implants: a qualitative focus group study | |
| dc.type | journal article | |
| dc.type.hasVersion | VoR | |
| dc.volume.number | 19 | |
| dspace.entity.type | Publication | |
| relation.isAuthorOfPublication | 5f07d36a-b597-4586-ba12-ab550b70466f | |
| relation.isAuthorOfPublication.latestForDiscovery | 5f07d36a-b597-4586-ba12-ab550b70466f |
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